Sixty-five days of niceness

The power of goodwill - sisters Kristie Purton and Nikki Wilson with Mary Elders. Photo: Daniel Hines

Don't be surprised. Because somewhere, sometime soon, when you least expect it, someone will step up and say: 'Hi, we are the cystic sisters and this one's on us”.

It could be a flashback to TV's ‘Candid Camera' 50 years ago. But in fact it will be the cystic sisters, as they've affectionately become known, spreading their very own brand of kindness and goodwill. And awareness.

'Never, never, never, ever!” exclaimed Mary Elders when the sisters stopped her in Chadwick Rd, Greerton, and thrust a posy of flowers into the unsuspecting retired teacher's hands. Just because they could.

And the 'never, ever” was her delight because she had never ever been the recipient of such spontaneous niceness in the street.

'People are usually asking for money and things – not giving. But it's an absolutely lovely, lovely thing to do.” And that prompted another round of hugs and pecking of cheeks with the cystic sisters.

And it was especially poignant for Mary Elders because, as a teacher, she had lost one of her pupils to the insidious disease.

The cystic sisters, Nikki Wilson and Kristie Purton, are again rolling out their 65 days of kind acts to sell their message, to make the world aware of Cystic Fibrosis, the cruel disease that is slowly suffocating them.

'So when we go out and start coughing and sounding crap people aren't going yuk! So if I go to the gym and start coughing I can explain I have CF and people will understand.”

‘Sixty-five roses' is what they call their efforts because, said quickly, it sounds like cystic fibrosis. 'You don't forget it then,” says Nikki. Last year the sisters taped coins to a parking machine. 'This treat's on us,” said the note. There was a cake delivered to the nurses at Tauranga's emergency department – the in-and-out of hospital sisters felt they owed the public health system. There were ‘scratchies' hidden in library books and lollipops and train-ride tickets handed out at Memorial Park.

'Last year we just winged it and it was hard coming up with a new idea for an act of kindness every day. So we would like some suggestions, some new ideas; new acts of kindness.”

Ideas will be gratefully accepted – message Kristie at Kristielea@hotmail.com or go to their Facebook page.

And all this altruism and selflessness against a backdrop of serious illness and hardship.

When the sisters were diagnosed with CF their parents were told they might survive to 20. Even 18 would be borderline. Kristie is 33 and a mother-of-three and 25-year-old Nikki is mother to Skyla, aged five. They have defied the odds.

So far – because the Cystic Fibrosis is still winning – they both need lung transplants.

'At the moment you wake up and you cough and cough and cough for the first two hours. 'You can't breathe and you have headaches,” says Kristie.

Nikki has been on the active transplant list for 11 months. 'I am waiting for little lungs – a small woman or child. They do come up, but not often.”

She had a close call. 'Right blood type, everything matched up but the lungs were too big, two litres too big.” The average lung capacity of an adult is between four and six litres.

Kristie is being assessed for a transplant. 'It's a long journey.” And it starts here.

And while they deal with the complexities of a debilitating and potentially life-threatening disease, there are good deeds to be done. Their 65 days of good deeds start Saturday, June 18 – although flowers for Mary Elders in Greerton was a good starter.

Florist Emma Cole of The Hawker's Wall in Piccadilly Arcade was so touched by the story of the cystic sisters she gave The Weekend Sun two posies at a snip. 'I love what they are doing,” says Emma. And in turn, the posies brightened two lives in Chadwick Rd.

The ‘65 roses of goodwill' is going around.

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